AWESOME
ALL GOD!!!
Saturday, May 18, 2013
Friday, May 17, 2013
The End....
We've reached... The end.
The end of straightening Mira's legs. I can hardly believe it.
There were many ways to start this post... We have such an array of emotions right now. We are grateful, this has been an amazing journey since October 2012. At times I can hardly believe she is the same child. Yet at the same time I feel a sense of loss for her, she lost an identity (good or bad) that she carried since birth. My understanding is that if you're born with a disability in China- that becomes "who you are", Sometimes literally by name... can you imagine?? We feel blessed to have the team of doctors & nurses that have cared for Mira, not just as a patient but they are caring for her as their own. They serve with the same hearts as missionaries. We are blessed because we know these days the medical field is FULL of staff that treats you as a number... Often with $$ signs attached. You find a very smart/knowledgable doctor who has TERRIBLE bedside manner OR you find a very nice/personable doctor who has questionable skills. When you know you have a good thing... You stay. Even if it means you travel 1800 miles for an X-ray. I know I've boasted him up before & as Christians we aren't to place our trust in people... However I know Dr Standard is here being the hands & feet of Jesus. Yes he gets paid but he skillfully treats with his big heart.
This morning he removed the fixator from Mira's left leg. It went well, the bone looks good, the infection appears to be under control. The only small glitch he found is that now her legs are straight it appears her left femur is turned in a bit making her a bit knock kneed. So he asked permission to place a small plate on her left femur that would stunt the growth on one side of her femur so as it grows it will straighten. This plate will be in place 8-12 months & then removed along with the rod in her left femur.
She seems to be doing great!
The end of straightening Mira's legs. I can hardly believe it.
There were many ways to start this post... We have such an array of emotions right now. We are grateful, this has been an amazing journey since October 2012. At times I can hardly believe she is the same child. Yet at the same time I feel a sense of loss for her, she lost an identity (good or bad) that she carried since birth. My understanding is that if you're born with a disability in China- that becomes "who you are", Sometimes literally by name... can you imagine?? We feel blessed to have the team of doctors & nurses that have cared for Mira, not just as a patient but they are caring for her as their own. They serve with the same hearts as missionaries. We are blessed because we know these days the medical field is FULL of staff that treats you as a number... Often with $$ signs attached. You find a very smart/knowledgable doctor who has TERRIBLE bedside manner OR you find a very nice/personable doctor who has questionable skills. When you know you have a good thing... You stay. Even if it means you travel 1800 miles for an X-ray. I know I've boasted him up before & as Christians we aren't to place our trust in people... However I know Dr Standard is here being the hands & feet of Jesus. Yes he gets paid but he skillfully treats with his big heart.
This morning he removed the fixator from Mira's left leg. It went well, the bone looks good, the infection appears to be under control. The only small glitch he found is that now her legs are straight it appears her left femur is turned in a bit making her a bit knock kneed. So he asked permission to place a small plate on her left femur that would stunt the growth on one side of her femur so as it grows it will straighten. This plate will be in place 8-12 months & then removed along with the rod in her left femur.
She seems to be doing great!
Thursday, May 16, 2013
East coast-bound...
We r heading back to see Dr Standard & we r scheduled for removal tomorrow morning... Stay tuned for the big reveal!!!
I leave with a reminder of before...
I leave with a reminder of before...
Tuesday, May 14, 2013
Seriously???
For months my hubby & I have been planning a return trip to MD for a family wedding. It was a difficult decision... Mira & I have never been apart. My mother in law offered to stay at our house so the girls will be in familiar surroundings.
Hubby & I were planning a long weekend of reconnection, rest, fun... Stress free.
Well... That was MY plan.
On Friday am Mira woke up complaining of being "sick". When I touched her she was warm... Sure enough 101.5 I dosed her up with some meds & kept her home from school. As the day went on she acted better but began to complain of pain in her leg. Greg & i left for MD. Well to make a long complicated story short, Mira spiked to 103.8! After speaking with Dr Standard he said she needed to go to the ER... Just what I want to throw on my MIL!! First they tested her for strep & she was positive. They were planning to discharge her on oral antibiotics. Her blood work came back with elevated white blood cells.. This landed her 2 1/2 days in the hospital on IV antibiotics! Come to find out her strep throat spread to her pin sites!! Praise God this infection was caught & is responding (slowly) to meds. We are scheduled to leave Thursday morning to go back to Baltimore for removal of her fixator on Friday! We are STOKED to see Mira metal free with STRAIGHT legs. I will be sure to post before & after photos.
If you think of Mira over the next few days please say a prayer for her.
Oh & by the way.. The weekend get away was ANYTHING but relaxing! Try stressed out from beginning to end! I feared Mira would suffer this separation & we could lose some of the amazing bonding that has happened... But God is faithful. He heard our prayers & calmed her heart!! Thank you!!! And thank you to Kara & Joe for taking good care of all 4 girls!!
Be blessed!
Vanessa
Hubby & I were planning a long weekend of reconnection, rest, fun... Stress free.
Well... That was MY plan.
On Friday am Mira woke up complaining of being "sick". When I touched her she was warm... Sure enough 101.5 I dosed her up with some meds & kept her home from school. As the day went on she acted better but began to complain of pain in her leg. Greg & i left for MD. Well to make a long complicated story short, Mira spiked to 103.8! After speaking with Dr Standard he said she needed to go to the ER... Just what I want to throw on my MIL!! First they tested her for strep & she was positive. They were planning to discharge her on oral antibiotics. Her blood work came back with elevated white blood cells.. This landed her 2 1/2 days in the hospital on IV antibiotics! Come to find out her strep throat spread to her pin sites!! Praise God this infection was caught & is responding (slowly) to meds. We are scheduled to leave Thursday morning to go back to Baltimore for removal of her fixator on Friday! We are STOKED to see Mira metal free with STRAIGHT legs. I will be sure to post before & after photos.
If you think of Mira over the next few days please say a prayer for her.
Oh & by the way.. The weekend get away was ANYTHING but relaxing! Try stressed out from beginning to end! I feared Mira would suffer this separation & we could lose some of the amazing bonding that has happened... But God is faithful. He heard our prayers & calmed her heart!! Thank you!!! And thank you to Kara & Joe for taking good care of all 4 girls!!
Be blessed!
Vanessa
Saturday, April 20, 2013
Today she turned 7!!!
Happy Birthday Mira!!
We had a fun filled day! We went to Cecilia's soccer game, then came home for a birthday bash!
Mira got a trampoline (jump-a-line as she calls it!) for her birthday along with so e great gifts from her family!
It was the sweetest thing... After she opened her gifts and said her thank you'd she began to stumble for words, finally she uttered..."I love all you guys!" It was with a few tears, I feel certain that was a sign of gratitude as well as a flashback to where she once was.
We had a fun filled day! We went to Cecilia's soccer game, then came home for a birthday bash!
Mira got a trampoline (jump-a-line as she calls it!) for her birthday along with so e great gifts from her family!
It was the sweetest thing... After she opened her gifts and said her thank you'd she began to stumble for words, finally she uttered..."I love all you guys!" It was with a few tears, I feel certain that was a sign of gratitude as well as a flashback to where she once was.
Friday, March 15, 2013
This time last year....
....We were in China. It has been one year since Mira joined our family. And what an amazing year it has been. I am still amazed at the work of our Lord. mira has many reasons from her past to sad, scared, untrusting & distant... but this girl lives life to the fullest!! She has a spirit that makes me ashamed of myself at times. she trusts, she loves, she laughs, she loves Jesus (or Jee-za as she refers to him!) I can hardly remember life without her. She adores her sisters and thanks God for EVERY bite of food she eats!
Many things have happened over the past year, the most obvious being the correction of her legs. We are coming to the end of this, my girls legs are BEAUTIFUL!
A few other things that rank pretty high is the fact that Mira can actually get her hair in a pony tail! She's grown 6" of hair in just 1 year, she's gained 8 lbs, grown over 4", she can count to 20 & she is learning her ABC's & she LOVES to be a helper around the house.
We are grateful for the nudge we got and even more grateful we listened! Praising God for our sweet girl!
We are choosing to celebrate our forever family day on the day we returned to the US & Mira met her daddy & sisters. That is March 22nd... Stay tuned for a new family photo!
Until then here's my sweet girl...
Many things have happened over the past year, the most obvious being the correction of her legs. We are coming to the end of this, my girls legs are BEAUTIFUL!
A few other things that rank pretty high is the fact that Mira can actually get her hair in a pony tail! She's grown 6" of hair in just 1 year, she's gained 8 lbs, grown over 4", she can count to 20 & she is learning her ABC's & she LOVES to be a helper around the house.
We are grateful for the nudge we got and even more grateful we listened! Praising God for our sweet girl!
We are choosing to celebrate our forever family day on the day we returned to the US & Mira met her daddy & sisters. That is March 22nd... Stay tuned for a new family photo!
Until then here's my sweet girl...
Thursday, February 28, 2013
So many tears today....
Mira has cried more today than any day since she's been with us.
My girl is having a tough time.
This surgery/ reconstruction has been radical. There's no other word to describe it. The results are/will be AMAZING! STAGGERING! She is pushing towards the finish lone but this darned infection continues to linger. Her leg is gross. We are doing our best to nurse her here from home. Dr Standard is on the final stretch of his mission trip to the Dominican, due to return on the weekend. We are scheduled to return to Baltimore on Wednesday to see him, we are hopeful that we can manage this until we get there. I've consulted with Allison, the PA, she gave us a few options, including IV antibiotics...none of which we want to do unless mandatory.
On a positive note we are just 6 short days from the end of Mira's turn schedule. Her legs look AMAZING!!!! See below!
Please continue to pray for Mira.
**Warning**
Nasty photos ahead........
..
My girl is having a tough time.
This surgery/ reconstruction has been radical. There's no other word to describe it. The results are/will be AMAZING! STAGGERING! She is pushing towards the finish lone but this darned infection continues to linger. Her leg is gross. We are doing our best to nurse her here from home. Dr Standard is on the final stretch of his mission trip to the Dominican, due to return on the weekend. We are scheduled to return to Baltimore on Wednesday to see him, we are hopeful that we can manage this until we get there. I've consulted with Allison, the PA, she gave us a few options, including IV antibiotics...none of which we want to do unless mandatory.
On a positive note we are just 6 short days from the end of Mira's turn schedule. Her legs look AMAZING!!!! See below!
Please continue to pray for Mira.
**Warning**
Nasty photos ahead........
..
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